Wednesday, April 10, 2013

Did you just say aqua therapy?!

Wyatt's physical therapy officially started 2 Mondays ago.  He had his assessment & his first official appointment was this last Monday.  Let me tell you, with all of his therapy appointments, it is a sigh of relief that they come to my house!  Anyway, while assessing Wyatt, the PT observed that Wyatt didn't seem especially comfortable with being moved around, especially new movement.  She asked if I had ever considered aquatic therapy.  YYYAAAAAAAAYYYYYYYYYY!!!!!!  I totally have heard of aquatic therapy, in fact, I know of another boy with ichthyosis that love love loves it.  I got pretty excited and brought it up a couple of more times during the session, so she told me that she'd look into it for Wyatt.  It turns out that most children don't get to start this type of therapy until they are about 18 months old.  However, because of Wyatt's circumstances, his PT is going to try hard to get it through anyway.  

We go to see his derm today & as soon as she gives her nod of approval, the PT is going to get the ball rolling.  The therapy starts May and goes through September {it's at the Rose Bowl, so they use the therapy pool there during the football off season}, so our timing is kind of perfect.  

The only thing that really worries me is, the pool is outside, and the pool is heated, so I worry about Wyatt overheating.  It's not enough to deter me trying to get him in though.  I think the benefits of this type of therapy will far outnumber the potential detriments.  It'll be just like everything else with Wyatt so far...

trial & error. :)


Tuesday, April 2, 2013

1st world problems

Last night, while I was in the middle of doing my dishes, the water shut off.
What.
We live in an area that gets water from a well.  It's small and is owned and run by the home owners in this area.  Luckily my father in law is on the water board and so I have a quick line to info on what the deal is.  He told me that there was a small break in one area that he was going to repair, and a big break in the line in another place that they were going to have to call out 'the professionals' to fix.  I asked for an ETA on the water turning back on and was informed in would be out all night.
Okay. Great.
So that's all fine and great for Jared and I, but Wyatt HAS to have his bath every night.  Why couldn't the water have waited 15 minutes more to shut off?  I would have had his bath water all done by then!  Sigh.  Luckily Wyatt's Godparents live nearby and they let us come over to use their tub.  I felt a little ridiculous with all of the things I needed to bring!  
A cleaner with bleach & a scrubbie {I clean the tub before Wyatt gets his bath every night}
Aveeno baby wash
handtowel {to put under his head}
washcloth
cup thingy {to pour water on Wyatt}
towel
jammies
diaper
aquaphor & wipe warmer
all of my dirty bottles to clean {In case the water didn't turn back on}
bottle cleaning stuff
blanket
clean bottle & breastmilk to warm up over there
I swear it feels like I'm going on vacation whenever I take Wyatt anywhere haha

Wyatt's bath is like medicine for his skin though.  He absolutely needs it.  I'm grateful that we live in a place that has running water!  I'm grateful that we have friends nearby that lets us come over and use their facilities in a pinch.  I'm grateful that we have electricity.  The power has been out a couple of times since Wyatt came home and it's amazing how many things it affects.  He has his wipe warmers, humidifier, noise maker that are all powered by electricity, plus all of the breast milk for him is stored in my fridge & freezer.  We would be in so much trouble if the power went out long term!  It might not be a bad idea to invest in a generator...

This morning when I woke up the water was back on, hooray!  It's almost funny how many times I tried to turn the water on last night before remembering it wasn't going to work.  I try not to take luxuries like that for granted, but it's so easy to!  I definitely need to have more of an emergency supply of water for future 'emergencies'.