In celebration of Ichthyosis awareness month I have been doing a 31 days of Ichthyosis picture series on facebook. It's about time I shared it here too :) Here are days 1-16...
31 days of Ichthyosis
day 2
Wyatts little hand, it looks so good!
day 3
Wyatt with his great grandma pope
Wyatt with his great grandma pope
day 4
I love morning snuggles
I love morning snuggles
day 5
Ran 13.1 miles to raise money and awareness for Ichthyosis
Ran 13.1 miles to raise money and awareness for Ichthyosis
day 6
Fun fact: When Wyatt eats, his skin always gets stained the color of the food he's eating
Fun fact: When Wyatt eats, his skin always gets stained the color of the food he's eating
day 7
Water is like medicine for Wyatt's skin. Right now his daily bath is about 30 minutes long followed by a generous coating of aquaphor to help hydrate his skin
Water is like medicine for Wyatt's skin. Right now his daily bath is about 30 minutes long followed by a generous coating of aquaphor to help hydrate his skin
day 8
Thanks to Eucerin calming cream, Wyatt has some gorgeous little legs he gets this lotion applied every 3 hours daily
Thanks to Eucerin calming cream, Wyatt has some gorgeous little legs he gets this lotion applied every 3 hours daily
day 9
De-scaling Wyatt's scalp is a daily activity to get hair that looks this good.
he's SO handsome!
day 10
I'm grateful for our handicap placard on days like today. Wyatt can't sweat so he overheats very easily and being able to park close and get inside fast helps to prevent this.
I'm grateful for our handicap placard on days like today. Wyatt can't sweat so he overheats very easily and being able to park close and get inside fast helps to prevent this.
day 11
Washing aquaphor out of clothes = aquaphor in pipes = clogged pipes = water everywhere.
Washing aquaphor out of clothes = aquaphor in pipes = clogged pipes = water everywhere.
Now to find a good plumber...
day 12
We keep the temperature inside our house at 70 degrees for this little guy. I don't want to know what our electric bill is going to be this summer!
We keep the temperature inside our house at 70 degrees for this little guy. I don't want to know what our electric bill is going to be this summer!
day 13
This momma is officially a support volunteer for families affected by Ichthyosis! I can't wait to pay it forward
This momma is officially a support volunteer for families affected by Ichthyosis! I can't wait to pay it forward
day 14
One of the things that helps to keep Wyatt's skin hydrated is, we have a humidifier constantly running to keep the humidity level between 50-60% in our house.
One of the things that helps to keep Wyatt's skin hydrated is, we have a humidifier constantly running to keep the humidity level between 50-60% in our house.
day 15
Wyatt's personal pharmacy
Wyatt's personal pharmacy
day 16
Wyatt's skin grows approximately 300% faster than average skin. This means he burns a LOT more calories, which requires him to have a high calorie diet. This kid is always hungry!
Wyatt's skin grows approximately 300% faster than average skin. This means he burns a LOT more calories, which requires him to have a high calorie diet. This kid is always hungry!
He is just one of the most adorable children I've ever seen. I've been following your blog since he was born (a friend who's child had EB showed it to me) I just have to say, you're such a strong person, and a fantastic mother. I don't know you, but I'm proud of how well you've handled all of this and how much you've done for yourself and other parents in similiar situations!
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